(Poem by Trish Dyne)
As I sat aching and numb with my tears
My eyes showing pain
after all of these years
What will happen? What lies ahead?
My heart beating loudly with the fears in my head
Will I recover? Is my life at an end?
She touched my hand gently
and then softly she said
What lies ahead we can’t know for sure
We don’t have answers
and we don’t have cures.
The pain can be endless,
so much will be changed.
But as you can see
there are worse things than pain.
some diseases are accepted
But with some it’s quite clear
With ‘these’ awful diseases
you will slowly disappear
In time you are forgotten
and in time you will see
That all you have worked for
or may have wanted to be
May be taken from you,
although no one may know
How painful it is
Because you can’t let it show
To talk about invisible diseases today
Is seen as lying and failure,
So you may be forced to go away
there is no medicine to help ‘others’
be kinder or try
To accept that there are things
that can’t be seen with the eye
And while there are many questions
one thing remains true
It’s not the disease that is invisible
Its your suffering.