As I sat aching and numb with my tears 

My eyes showing pain 
after all of these years 

What will happen? What lies ahead?

My heart beating loudly with the fears in my head 

Will I recover? Is my life at an end? 

She touched my hand gently 

and then softly she said

What lies ahead we can’t know for sure 

We don’t have answers 

and we don’t have cures. 

The pain can be endless, 

so much will be changed. 

But as you can see 

there are worse things than pain.  

some diseases are accepted

But with some it’s quite clear 

With ‘these’ awful diseases 

you will slowly disappear

In time you are forgotten 

and in time you will see 

That all you have worked for

or may have wanted to be 

May be taken from you, 

although know one may know 

How painful it is

Because you can’t let it show 

To talk about invisible diseases today 

Is seen as lying and failure, 

So you may be forced to go away 

there is no medicine to help ‘others’ 

be kinder or try

To accept that there are things 

that can’t be seen with the eye

And while there are many questions 

one thing remains true 

It’s not the disease that is invisible 

Its your suffering. 

It’s you.