I truly hope what I will share is not typical for many out there on biologic therapy. I really hope it is just my own misfortune that I have the experiences that I have had as I read that many of these drugs are doing absolute miracles for many people out there. And I love hearing good news stories.
After all we all want to think that biologics will hold the answers for many of our pain and challenges.
To date I have had 2 different biologic therapies which I spent a year trialing, and trying to tolerate in the hope that my body would adjust to the many side effects I was experiencing. But this is not one of those stories. Sadly.
I experienced severe and difficult side effects to both of these drugs which made living even more compromised and difficult.
I really wanted to acclimatize to the drugs and I did my utmost to ‘hang in there’ while they did their job … But I just couldn’t cope.
The side effects ranged from excruciating stomach pains, headaches, vommiting, fatigue … and the list went on… It was truly awful having to admit that I could tolerate them no longer.
My Rheumy agreed a ‘medical break’ was needed and I immediately ceased biologic therapy.
Fast forward a year later and my joint pain has progressed and increased which is making me feel torn between returning to the drawing board and rolling the dice once again.
This is not an easy decision to make, like many of the decisions we get handed in the world of Autoimmune diseases.
Sadly my other AI diseases have progressed too and so I feel I must face the topic of medical interventions again. Not that I was ever completely without Meds. I remained on the usual steroids, MTX, plaquenil, immune supressants and other drugs to help with symptomatic issues I have, and I also remain true to my supplements and completary treatments.
My own experience is that biologics are a very serious topic and while I am understandably worried about returning and trialing another drug (there are currently 8 in use in this country) I am truly struggling with the pain and limitations of a progressing disease so my options feel limited.
I have always told my readers that there are very few easy choices for those fighting Autoimmune diseases and I truly wish this wasn’t the case. But if you are one of those who have achieved wonders, even remission, with biologics then I truly congratulate you and wish you continued success, however if you are like me and find biologics a very hard road to travel, then my heart goes out to you and I hope that the future holds more options and help for us in the struggle to manage difficult diseases.